Schizophrenia affects millions, yet many families struggle with how to provide effective support. Gail Simmons, a media personality and cookbook author, learned these lessons firsthand when her brother was diagnosed with the condition. Her family’s experience underscored a simple truth: connection matters, especially during challenging times. The key is not to “fix” the illness, but to help the person navigate care while offering consistent support. Here’s how families can make a difference.
The Reality of Schizophrenia: It’s a Health Diagnosis
Simmons’ family quickly realized schizophrenia, like any other medical condition, is not a moral failing or a matter of willpower. Frustration won’t change the reality of the illness. The focus must be on helping the person get treatment while offering unwavering support. This approach involves understanding that the condition can fluctuate: some days will be good, others will be hard.
1. Just Show Up: Presence Over Performance
Sometimes, the most impactful support isn’t about saying the right thing, but being there. Simmons recalls sitting quietly with her brother on difficult days, or simply sharing a meal without pressure. This consistency, even in silence, reinforced that he wasn’t alone. Creating that sense of safety allows conversations to happen naturally.
This is the core idea behind the Bristol Myers Squibb’s COBENFY Connections campaign: open dialogue can help people find the right treatment. Simmons hosted a gathering with individuals living with schizophrenia, their caregivers, and a psychiatrist to emphasize this point. The simple act of sharing a meal and talking openly proved surprisingly powerful.
2. Steady Support Through Treatment
Schizophrenia remains deeply stigmatized. An estimated 2.8 million adults in the U.S. live with the condition, many feeling isolated due to fear of judgment. Families can help by:
- Encouraging open communication with doctors.
- Being a sounding board for symptoms.
- Supporting the individual’s journey through treatment.
Some, like Avary and Chanel, found COBENFY™ (xanomeline and trospium chloride) helpful in managing their symptoms. While this medication isn’t for everyone, the experience highlights the value of finding the right approach with a healthcare professional. Caregivers play a critical role in advocating and encouraging open discussion with doctors.
3. See the Person, Not Just the Diagnosis
Schizophrenia is one part of a person’s identity. Simmons emphasizes recognizing creativity, humor, and passions that exist alongside the condition. Her brother was a musician and artist; seeing that reminded her that his illness didn’t define him. Families must set aside preconceived notions to offer unconditional support.
4. Consistency: Good Days and Bad
Support isn’t just for crises. Simmons stresses the importance of consistent presence, even on good days. This creates a foundation of stability, and acknowledges that progress is rarely linear. Caregivers must also prioritize self-care to avoid burnout, as consistent support requires emotional resilience.
5. Break the Silence: Talk About It
Stigma thrives in silence. Simmons believes openly discussing schizophrenia is one of the most powerful ways to change perceptions. Sharing experiences, whether around the dinner table or in broader conversations, humanizes the condition and reduces isolation.
Ultimately, there is no single path for people living with schizophrenia. But one thing remains clear: no one should navigate it alone.
Important Safety Information (COBENFY™):
Do not take COBENFY if you have urinary retention, severe liver problems, or gastric retention. Tell your healthcare provider about all medical conditions and medications you take. Side effects may include nausea, constipation, high blood pressure, and dizziness. See U.S. Full Prescribing Information for details.
The most important takeaway is this: supporting someone with schizophrenia requires empathy, patience, and a commitment to seeing the person beyond the diagnosis. Sharing experiences and breaking the silence can make a world of difference.
